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　　“作為一(yi)(yi)名(ming)基(ji)層人(ren)大代表(biao)(biao)，我主(zhu)要從事(shi)腦(nao)癱兒(er)童(tong)公(gong)益救(jiu)(jiu)(jiu)助(zhu)事(shi)業，在(zai)(zai)山東(dong)財金集團的(de)(de)堅強領導下，公(gong)益救(jiu)(jiu)(jiu)助(zhu)項目已累(lei)計為13259名(ming)腦(nao)病兒(er)童(tong)患(huan)者提(ti)供救(jiu)(jiu)(jiu)助(zhu)診療(liao)服(fu)務，成功救(jiu)(jiu)(jiu)助(zhu)腦(nao)癱患(huan)兒(er)910人(ren)，救(jiu)(jiu)(jiu)助(zhu)區域涉及(ji)新疆、西藏、重慶等11個省市。經評估檢測(ce)，手術(shu)靶點準確率達(da)(da)100%，有(you)效率達(da)(da)98.2%，治療(liao)技術(shu)達(da)(da)國(guo)際先進水平。”這是全(quan)國(guo)人(ren)大代表(biao)(biao)、山東(dong)財金健康(kang)集團諾萊醫學腦(nao)癱兒(er)童(tong)公(gong)益救(jiu)(jiu)(jiu)助(zhu)中(zhong)心主(zhu)任王川，在(zai)(zai)第(di)十四屆(jie)全(quan)國(guo)人(ren)民代表(biao)(biao)大會第(di)一(yi)(yi)次會議后的(de)(de)山東(dong)代表(biao)(biao)團審議時的(de)(de)發言。

　　經(jing)統計，我(wo)國目(mu)前(qian)共有(you)600多(duo)萬(wan)(wan)名腦(nao)癱(tan)(tan)患者，其中(zhong)12歲以下的(de)(de)腦(nao)癱(tan)(tan)兒(er)(er)童(tong)(tong)(tong)有(you)178萬(wan)(wan)人(ren)(ren)，每年(nian)新增腦(nao)癱(tan)(tan)病例4到6萬(wan)(wan)人(ren)(ren)。據不完全(quan)分析(xi)，一名腦(nao)癱(tan)(tan)患兒(er)(er)對家庭與社會造成的(de)(de)經(jing)濟壓力達50多(duo)萬(wan)(wan)元，而全(quan)國70%的(de)(de)腦(nao)癱(tan)(tan)患兒(er)(er)都生(sheng)活在貧困地(di)區。在山(shan)東(dong)省(sheng)(sheng)，持有(you)殘(can)(can)疾人(ren)(ren)證(zheng)的(de)(de)殘(can)(can)疾兒(er)(er)童(tong)(tong)(tong)10.26萬(wan)(wan)人(ren)(ren)，其中(zhong)腦(nao)癱(tan)(tan)兒(er)(er)童(tong)(tong)(tong)占(zhan)比9.5%。山(shan)東(dong)省(sheng)(sheng)委、省(sheng)(sheng)政府高(gao)度(du)重視殘(can)(can)疾人(ren)(ren)康(kang)(kang)復(fu)工作(zuo)，去年(nian)全(quan)省(sheng)(sheng)累計為殘(can)(can)疾人(ren)(ren)提供基本(ben)康(kang)(kang)復(fu)服務(wu)174.8萬(wan)(wan)人(ren)(ren)次，康(kang)(kang)復(fu)救助殘(can)(can)疾兒(er)(er)童(tong)(tong)(tong)4.2萬(wan)(wan)人(ren)(ren)次，殘(can)(can)疾人(ren)(ren)康(kang)(kang)復(fu)服務(wu)率、殘(can)(can)疾兒(er)(er)童(tong)(tong)(tong)康(kang)(kang)復(fu)救助總量均持續位(wei)居全(quan)國首位(wei)。近年(nian)來，山(shan)東(dong)財金健康(kang)(kang)集(ji)團旗下諾萊(lai)醫學攜手山(shan)東(dong)省(sheng)(sheng)殘(can)(can)聯(lian)與中(zhong)國健康(kang)(kang)促(cu)進(jin)基金會，先后開展(zhan)(zhan)“共享陽光(guang)—關愛殘(can)(can)疾兒(er)(er)童(tong)(tong)(tong)”救助項(xiang)目(mu)、“新的(de)(de)希望”全(quan)國腦(nao)癱(tan)(tan)兒(er)(er)童(tong)(tong)(tong)公益(yi)項(xiang)目(mu)等，開辟了(le)機器人(ren)(ren)腦(nao)立體定(ding)向(xiang)手術(shu)治(zhi)(zhi)療兒(er)(er)童(tong)(tong)(tong)腦(nao)性(xing)(xing)癱(tan)(tan)瘓(huan)的(de)(de)應用系列(lie)模式，擴展(zhan)(zhan)機器人(ren)(ren)腦(nao)立體定(ding)向(xiang)手術(shu)治(zhi)(zhi)療的(de)(de)疾病譜，同(tong)時加強(qiang)了(le)外科手術(shu)治(zhi)(zhi)療兒(er)(er)童(tong)(tong)(tong)腦(nao)性(xing)(xing)癱(tan)(tan)瘓(huan)的(de)(de)有(you)效(xiao)性(xing)(xing)和(he)安全(quan)性(xing)(xing)。

　　對于(yu)如何完善(shan)全(quan)國(guo)(guo)腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)復(fu)(fu)救(jiu)助(zhu)體(ti)系，保(bao)(bao)障(zhang)殘疾(ji)人(ren)基(ji)本民生(sheng)(sheng)(sheng)(sheng)、改善(shan)殘疾(ji)人(ren)生(sheng)(sheng)(sheng)(sheng)活品質(zhi)、促進(jin)(jin)殘疾(ji)人(ren)全(quan)面(mian)發展，王川提出，一要(yao)完善(shan)政策支持和(he)(he)(he)資(zi)金(jin)(jin)保(bao)(bao)障(zhang)，實(shi)(shi)現腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)全(quan)生(sheng)(sheng)(sheng)(sheng)命周(zhou)期(qi)的(de)(de)(de)康(kang)復(fu)(fu)救(jiu)助(zhu)。國(guo)(guo)家層面(mian)建(jian)立(li)健全(quan)慈善(shan)事業(ye)(ye)稅收優(you)惠制度(du)，完善(shan)和(he)(he)(he)落實(shi)(shi)激勵(li)(li)政策措(cuo)施，補(bu)短板強(qiang)弱項(xiang)(xiang)，激發全(quan)社會(hui)(hui)關心慈善(shan)、參(can)與(yu)(yu)慈善(shan)的(de)(de)(de)熱情。加大(da)針對腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)救(jiu)助(zhu)工(gong)作(zuo)的(de)(de)(de)資(zi)金(jin)(jin)投入(ru)，并保(bao)(bao)障(zhang)各(ge)項(xiang)(xiang)救(jiu)助(zhu)政策的(de)(de)(de)有效銜接與(yu)(yu)執(zhi)行。總結(jie)推(tui)(tui)廣山(shan)東(dong)省腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)復(fu)(fu)救(jiu)助(zhu)專項(xiang)(xiang)行動經驗，在全(quan)國(guo)(guo)建(jian)立(li)統一的(de)(de)(de)腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)監測與(yu)(yu)服(fu)務(wu)體(ti)系，規(gui)范腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)篩查、治療、康(kang)復(fu)(fu)、教育(yu)、就(jiu)業(ye)(ye)等方面(mian)的(de)(de)(de)服(fu)務(wu)流程和(he)(he)(he)質(zhi)量(liang)管(guan)理(li)。完善(shan)腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)信息化基(ji)礎建(jian)設，實(shi)(shi)行實(shi)(shi)名制動態(tai)管(guan)理(li)，優(you)化腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)復(fu)(fu)救(jiu)助(zhu)申請審核，實(shi)(shi)現腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)全(quan)生(sheng)(sheng)(sheng)(sheng)命周(zhou)期(qi)信息的(de)(de)(de)互(hu)聯互(hu)通(tong)與(yu)(yu)一體(ti)化救(jiu)助(zhu)。二要(yao)加快技術應(ying)用(yong)(yong)(yong)和(he)(he)(he)服(fu)務(wu)探索(suo)，支持腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)救(jiu)治手段的(de)(de)(de)迭(die)代創(chuang)新。深入(ru)實(shi)(shi)施創(chuang)新驅動發展戰略，加快推(tui)(tui)動科技成(cheng)果轉移轉化，充分(fen)發揮(hui)科技創(chuang)新與(yu)(yu)生(sheng)(sheng)(sheng)(sheng)物技術應(ying)用(yong)(yong)(yong)助(zhu)推(tui)(tui)器(qi)作(zuo)用(yong)(yong)(yong)，鼓勵(li)(li)和(he)(he)(he)支持利用(yong)(yong)(yong)先進(jin)(jin)智能(neng)技術、生(sheng)(sheng)(sheng)(sheng)物技術提升腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)治療與(yu)(yu)康(kang)復(fu)(fu)的(de)(de)(de)水平與(yu)(yu)服(fu)務(wu)供(gong)給，針對應(ying)用(yong)(yong)(yong)智能(neng)技術與(yu)(yu)生(sheng)(sheng)(sheng)(sheng)物技術的(de)(de)(de)創(chuang)新項(xiang)(xiang)目，給予政策和(he)(he)(he)資(zi)金(jin)(jin)支持，切實(shi)(shi)推(tui)(tui)動解決產業(ye)(ye)和(he)(he)(he)企業(ye)(ye)的(de)(de)(de)技術難題(ti)。三(san)要(yao)倡導國(guo)(guo)企帶頭和(he)(he)(he)全(quan)民參(can)與(yu)(yu)，搭建(jian)社會(hui)(hui)性更強(qiang)的(de)(de)(de)公(gong)益(yi)慈善(shan)捐(juan)贈(zeng)平臺。探索(suo)設立(li)全(quan)國(guo)(guo)腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)公(gong)益(yi)專項(xiang)(xiang)基(ji)金(jin)(jin)，服(fu)務(wu)于(yu)廣大(da)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)的(de)(de)(de)健康(kang)成(cheng)長，充分(fen)調動社會(hui)(hui)力量(liang)以公(gong)益(yi)慈善(shan)捐(juan)贈(zeng)形式參(can)與(yu)(yu)腦(nao)(nao)癱(tan)(tan)(tan)(tan)兒(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)復(fu)(fu)救(jiu)助(zhu)，團結(jie)凝聚更廣泛的(de)(de)(de)社會(hui)(hui)愛(ai)心力量(liang)。鼓勵(li)(li)國(guo)(guo)有企業(ye)(ye)結(jie)合鄉(xiang)村振興、東(dong)西協(xie)作(zuo)、黃河戰略、援(yuan)疆援(yuan)藏等幫(bang)扶項(xiang)(xiang)目，帶動社會(hui)(hui)企業(ye)(ye)和(he)(he)(he)公(gong)眾參(can)與(yu)(yu)專項(xiang)(xiang)基(ji)金(jin)(jin)公(gong)益(yi)慈善(shan)捐(juan)贈(zeng)，積極奉獻愛(ai)心、履(lv)行社會(hui)(hui)責任。

　　黨的(de)(de)(de)二十(shi)大(da)報告和今年的(de)(de)(de)政府工作(zuo)報告都強調要“促進殘疾人(ren)事(shi)(shi)業全面發(fa)展(zhan)”。王川(chuan)表示(shi)，山東財(cai)金健康集團將以建設國(guo)內一流水平的(de)(de)(de)現(xian)代化腦(nao)科學臨床(chuang)研究中(zhong)心為(wei)契機，加大(da)科研力量投入(ru)，持續做好腦(nao)癱(tan)兒(er)童弱勢群(qun)體(ti)的(de)(de)(de)救助工作(zuo)，扛起國(guo)有企(qi)業社會責任，持續為(wei)殘疾人(ren)事(shi)(shi)業插上“科技(ji)的(de)(de)(de)翅膀”，把更(geng)多的(de)(de)(de)溫暖傳遞(di)到孩子們心中(zhong)。

【責任編輯：語謙】